I'm Allergic To Myself | BORN DIFFERENT
100,806
Published 2024-05-04
MEDICAL MYSTERY, Beth, experiences extreme allergic reactions to "pretty much everything" that comes into contact with her. Doctors have "never seen anything like" the 20-year-old's condition before, so have only been able to suggest a possible diagnosis of mast cell activation syndrome. Beth can react to anything from her own emotions to the smell of food in the air - usually resulting in red, oozing hives covering her skin, which at their worst have left Beth "screaming" in pain. But her allergies can also be "life threatening" - just the smell of paprika or chilli can send Beth into anaphylactic shock and she keeps epipens in every room of the house just in case she has a severe reaction. To protect herself as much as possible, she has had to massively restrict her diet and remain at home most of the time, which has affected other aspects of her life too. When Beth met her partner Sasha, she assumed they would "go [their] separate ways" due to the impact it would have on Sasha's life - and Beth admits that she still struggles with feelings of guilt: "That's always in the back of my mind that I feel like I've made Sasha miss out on so much." But as time has gone by and Sasha has also willingly adopted the role of Beth's full-time carer it has become clear that she is going nowhere. To this day, she continues to reassure Beth that "I want to be by your side and I'm not going to leave just because of your health." The couple have now been together for two years and the relationship has instilled a newfound confidence in Beth: "She completely changed my life, she completely changed the way I saw my health and I saw my skin. She made me feel beautiful." And having recently taken to social media to share her story and advocate for other young people living with chronic conditions, Beth has turned her pain into purpose: "I hope that people take away from my story that you're perfectly imperfect the way you are - don't shy away."
Follow Beth:
www.tiktok.com/@bethtsangarides
www.instagram.com/bethtsangarides
Videographer: Max Thurlow
Producers: Kim Nguyen, Tom Buckman, Georgia Embling & Courtney Buabeng
Editor: Dalene Low
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All Comments (21)
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What a wonderful partner. I’ve been fighting cancer now for five years and my husband has stuck with me the whole time too. My immune system been so low so he can’t see his friends or go a lot of places. He makes the sacrifices anyway.
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Beth, don’t ever feel guilty for Sasha! If she wanted to she could have walked away already long time ago, but she stays for you, because she loves you, and you deserve that love. There is no need to feel guilty, just appreciate that you have someone that loves you as much as Sasha does, you can tell from this video that she means a lot to you and helps you pull through. I really hope your condition will get better some day ❤️
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"Being able to spend it with you is better than spending it on my own." -Sasha. 💜💜
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Obviously no one can diagnose on the internet but some of this sounds like my Mast CellActivation Disorder. I got diagnose through a bone marrow biopsy. I hope you're able to figure more of it out
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Everyone probably thinks the caring for her or giving up foods/activities is the hardest part, but speaking from experience, watching your loved one go through pain you can't help them with is much harder 😢
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I am so greatful to have been given this opportunity 💜remember your perfectly imperfect the way you are 🫶
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When you love somebody, it’s not really caregiving. It’s an act of love. But caregivers also need to make sure they are mentally healthy
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I am allergic to dust, mold, pollen and cat hair, and I will never complain again. Sasha is an angel, such a great partner, we all should one day have that kind of person to love us.
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Awww.That would suck but props to her partner for being so sweet, patient,caring and loving to her.. 💜
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The worst flare up looked like a third degree burn which I'm amazed that her skin recovered so well from and her condition is obviously more than just skin deep for her to need full-time help and mobility aids . Even with her flare-ups she's got an amazing bone structure and tall elegant proportions which reminds me so much of a ballerina !
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Ugh my god, that looks so incredibly painful. I'm so happy they have eachother and Beth has support
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These last couple of years my wife too has been my care giver I love her so much for beingthere withme!!!! ❤❤❤❤❤
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I'm allergic to myself too, at least im not alone.
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What a lovely and kind woman Sasha is. She is one in a billion.
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Having someone by our side really make fighting thru our bad days worth it. I’m so happy for these two lovely souls, that the found each other, and love each other thru every moment.
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I’ve seen this girl on TikTok on live a few times and she’s so nice. She never gets offended if people ask the same questions especially if her face flares up 💗
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Damn girl that sucks ive heard of people allergic to their own sweat and a story about a baby that was allergic to their own mother i hope they find a cure for your illness stay strong and good luck
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Beth, you are a beautiful, strong young woman. And so is Sasha. I wish you both a happy life.
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They have such a beautiful relationship. Beth seems really thankful for everything Sasha does for her. I so wish they will have a beautiful, long and healthy life and that medicine will find a way to help Beth and others with similar conditions
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My sister had PoTS and severe allergies with facial rash like you. She had 6 food she could eat without reacting. She is now on an injectable m9nocl9nal antibody called dupixent, and its been amazing for her.
