I Haven’t Eaten In 4 Years | BORN DIFFERENT

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I am 72 years old and dealing with being this age , and the pains we deal with in aging. BUT, after seeing what this young woman is dealing with at her age. I will never complain again because when I was her age, chronic illness wasn’t even a concern or thought. My heart goes out to her and I applaud her strength and determination to go on with her life. Cheers to you ❤❤

She handles this with such style and grace .. I wish her and her family all the best

I LOVE that she uses the little energy that she has to changes things. To make this world a bit more inclusive for people who are sick and have dissabillities. Bless her for that.❤ I am ill and disabled and I am fighting with you from The Netherlands.

What a brave and graceful young woman. I wish her all of the joy and peace in the world. Her poor dad- you can see he would easily lay his life down for his child

I’m 36 and can’t imagine the thought of my life ending out of the blue. The dad shouldn’t feel guilty. I wish her the best.

You can see the guilt on dad's face. Very sad but her personality is everything. What a marvelous family.

Infection is a huge risk. My heart goes out to her. I hope people around her are supportive and wear masks if they are ill, wash their hands and just remain understanding if she does't always want to go out or let folks in to her home.

This woman is a total boss. 🙋‍♀️

Poor girl, not even being able to enjoy food and drink, one of life's basic pleasures. She's doing well to remain positive

She’s got a good attitude I like that she’s doing the best she can with her situation and does not let the struggles run her life.

I have Loeys-Dietz, so this video is a little scary for me. I'm fortunate to have a milder case, but my sister who is 36 is starting to suffer from the more serious side effects. I wish you well and hope you can still have a long and fulfilling life. Our condition is rare, but it is also often left undiagnosed. There are likely many more of us out there that will never know until it's too late. I'm happy that I know, even if sometimes I wish I didn't.

If 1 in 4 people are disabled (including myself) why aren’t they more facilities out there. I completely understand how your lovely Dad feels as I too past an inherited disability onto my 2 children, although it wasn’t until they got diagnosed that I actually got my diagnosis. I feel incredibly guilty as I know actually what they’re going through. It’s awful watching them suffer, 24/7 chronic pain, organ problems, chronic fatigue, POTS, Refex Anoxic Seizures to name just a few. Daily living is a daily struggle but we do our best to get through. Thank you so much for sharing this video. You’re a true inspiration! ❤❤

SHES EVERYTHINGGGGG!!!! Her family is soooooo beautiful and her husband is perfect for her. I love this girl and her story 💜💜💜

Girl I love the way you have learnt to deal with the situation. You are an inspiration. You have made up your mind that you want to live life. There are so many people who don't have such a situation but are not grateful for how God has blessed them. You have made your spot in this world. God has chosen you to be a miracle for everyone. You have wonderful parents. That's how a life partner should be. Who stays at your side in a good or bad situation . Your entire family is an inspiration. Lots of love from me to your family for being an inspiration to me and the world.

I’m 37, I was diagnosed aged 28 with fibromyalgia & Ehlers Danlos Syndrome, & as the years have gone on, many, many complex commodities attached to those conditions. Unlike this beautiful woman, I’ve simply given up. I’m alone, it’s just my elderly father & I now, in January 2022 (on her birthday) I lost my beautiful mother who passed from a burst aortic abdominal aneurysm, the coroner was so wonderful he wrote an urgent letter to my GP wanting me to get tested for vascular EDS, it was clear, but I then found out (although I always knew) mum had EDS (since it has to come from a parent), she suffered terribly throughout her life & it was a mix of emotions her being diagnosed after her passing. However, I found out hEDS can cause aneurysms. I had absolutely no idea. Just like this woman’s lovely father said.. the gift that keeps on giving. Living with chronic debilitating pain is awful, having no one to share it with / talk to is even worse. You see.. my mum was that person. We knew one another so well we rarely had to speak, just a cuddle, a kiss, we’d snuggle on the bed (as she became bed bound when I cared for her) & watch tv, read books, or just talk. I didn’t just lose my mother, I lost my best friend and confidant. My heart goes out to her & her family. I only wish I had half as much energy to make a change in the world, or to meet someone - just a friend, who understands the world we live in. Love & blessings to her, her family & all who walk the path of chronic health every day x

As a fellow disabled person, I am so inspired by your attitude. Finding the strength to "crack on," as you say, is often the hardest part 💜

😢😩 she's strong like a mountain!

Wish I could give her a hug. 🥺

the prevalence of LDS is vastly underestimated. I was diagnosed with EDS (Ehlers-Danlos Syndrome) for 11 years until I had genetic testing that showed my variant is associated with LDS. it’s hard to find assessment for it because my family hasn’t had the extensive aneurysms many with LDS have. I have the same GI problems this woman has, and mine actually have improved…I’m not tube fed anymore.