Teenager With Butterfly Skin Inspires Others | BORN DIFFERENT
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Published 2018-11-19
Despite being born with an incredibly rare condition that causes his skin to blister and tear with the slightest touch – John Hudson Dilgen is inspiring people with his motivational speaking. John, 15, was born with Epidermolysis Bullosa, a condition that leaves him in constant pain and affects only one in every 50,000 children in the United States. On a daily basis, John has to have the majority of his body wrapped in bandages to save him from infections and further harm – around 95 percent of John’s body is covered in open wounds. To find out more, visit: www.ebresearch.org
For more info, please visit: tunnel2towers.org/
The motivational work John does is for the EB Research Partnership: www.ebresearcg.org
Video Credits:
Videographer / director: Adam Gray
Producer: Nora Hakramaj, Ruby Coote
Editor: Beth Angus
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All Comments (21)
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She’s a damn good nurse and he’s a strong young man.
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That nurse cried, she showed she cared for that young man on a level that not every nurse cares for their patient. She is what every nurse should strive to be as.
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I got in shock when I saw him with the bandages off, I cannot even imagine how painful having those wounds is, I wish all the best for him.
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when he apologised for not being able to get deeper into the water my heart sunk, god bless him and his family
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No child deserves to go through this. It breaks my heart. Bless this whole family, including the nurse.
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i’m not normally someone who finds these videos hard to watch but seeing him take his bath and the amount of dread and pain he was feeling was so hard to watch
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I can honestly say this boy has changed my views on life and showed me that everyone is going through something, but there’s people who are going though something 100x worse. John is absolutely beautiful and his outlooks on life is what keeps me going every single day. I love how kind hearted and passionate he is as well as having the sense of humor that he does. Everyone needs to see these videos of this amazing kid and how inspiring he is, especially these days in society!!!
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This is horrible can’t imagine that poor boys pain he is literally in pain every minute of his life 🙁
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95% of his body covered with open wounds?? i cant imagine everyday feel pain... this is so heavy
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My heart aches , I had to stop watching , I’m a nurse I know how much pain he is . God bless him , but he such a trooper , I pray they find a cure for him .
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he’s such an intelligent, brave boy. Life can be so unfair.
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I’m crying 😭 This story broke my heart he’s warrior 🥺😍
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So sad....what an intelligent and well spoken young man
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after watching this who can ever complain about a paper cut again? this kid has courage, I wouldn't be able to go through this
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I want to meet this kid and tell him how much he’s inspired me
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“I don’t think I can I’m really sorry 😢” oh my goodness when he said that, I could feel how unbearable it is for him 😭😭😭
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This is like being skinned alive, daily. Which, fun fact, is supposed to be one of the most painful things to experience. One of the most painful ways to die. So the fact that he’s still here, living, making the most of life and being so positive, is really great.
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the fact that he's wearing avengers T-shirt is adorable. ure a strong fighter john. ure the real life hero
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Also, the dad making the ice cream float just melted my heart. Such a supportive group he had around him. ♥️
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THIS MADE ME CRYY 😭😢😞😪😩😫🤧☹️😔😢😢😭😭GOD BLESS THEM 🙏🏽🙏🏽
