Autism Awareness is Unhelpful - My Friend Autism #videopodcast #orionkelly

Everything you say is true. At 66 the whole idea of being autistic wasn't on the medical radar when I was a child or young adult. My doctor isn't willing to have me diagnosed because I am SURVIVING. Thriving is up to me. They don't even care to add me to the statistics of diagnosed people. I can "cope" so the fact that I am sure I am Autistic with ADHD doesn't matter at all to the "system". My doctor ignored me...and she is young. She hardly paid attention...to our USA overwhelmed system if you can survive you do not even qualify to get diagnosed. Thriving is up to me. None of our institutions really support us. I've survived. It's all I can say. To thrive I must create my own strategies. It's been a tough life. But screw it...I am still here. Good video, Orion. This may improve in another generation...as we straighten out some other things first. There are many other focuses right now. I have hope that next year after our election we will be able to make some progress forward. We've been fighting people who want to go backwards. I am glad younger people are advocating for themselves in this way. Now that humans have the internet things have been changing. This tool didn't exist when I was a kid...don't forget how important it is to be able to speak up instantly...and be heard around the world. What an amazing thing.

The UN is wrong. We aren't surviving. Too many of us die way too young. we die from anxiety related conditions like heart disease. We die because we end ourselves. There have been several studies that show that of people who end their own lives between 40 and 50% would merit being evaluated for an autism diagnosis based on questionnaires given to friends and family. So if you know someone that ended their existence it is a coin toss as to whether they merited a diagnosis of autism. That is a shattering situation.

43 and just getting a diagnosis finally and I can confirm I've been stuck in survival mode my entire life. I've got the autonomic and autoimmune disorders that prove it. You're right tho, it's not enough to just say that without the steps taken that's necessary to change things on a systemic level. I want to thrive tho.

I hope this video goes #viral. It deserves to be heard by millions and not just us that are autistic. This world is messed up.

Picking the day after a day where a lot of people take pranks too far (bullying), with FOOL in the name, really feels like an intentional slap in the face.

Thank you for talking about this Orion!🙂👍.

I’m late diagnosed and I can see where it comes from in my dad’s side of the family, in his mom, his mom’s siblings and his own siblings. I also think my big brother (he’d be 42 right now) was autistic. He had severe hidden anger issues and a bunch of other issues (like sleep deprivation, interoception issues so he didn’t realize when he was hungry or thirsty, sensory issues, etc) while he was attempting to own a house, own a machining company that he ran without help, and had a son, but was not with the mom. One day he just had a grand mal seizure while reading a book to his 4 year old so on the couch. Went to a doctor, couldn’t figure out why. 14 months later, had another grand mal seizure doing the exact same thing. Reading a book to his son while lying on the couch. Goes back to the doctor, still can’t figure it out. A year later, one takes his life in his sleep. I truly believe that he died from being undiagnosed autistic. From the incredible amount of stress he has under from being autistic, not knowing it, and attempting to force himself to be neurotypical like the world told him he had to be. He had an autopsy and he had no food or water in his system and his brain said that he was extremely sleep deprived. Both things most likely related to being autistic.

I was lucky enough to get a diagnosis when I was 5. That was back in 1980. April has been my least favourite month since the whole Autism Awareness thing started. We don't need any more awareness. We need acceptance. I was in Special Ed all through school for some subjects. Of all the kids in the classes that I was in, I was the least accepted by my regular peers. I was teased and bullied about everything from the way I spoke to the size of my head. One kid told me if I don't stop thinking so much that my head was going to explode because it was so big. I was called a Cockney even by the kids in the special classes that I was in.

Hi Orion amazing video as always. Keep up the good work. I'll always watch your videos :DDD The college I go to is stupid and they strugggle to understand how to help people with autism. I have been in trouble there because they decided to change my routine without warning so I decided to have a slightly longer break so I wouldn't be as upset and I got told off for that. Another thing that happened. I was overwhelmed in the morning because it was incredibly loud (I got taken the the head of my subjects office (She spoke to me and helped me calm down) However... My TA (Teaching Assisstant) decided to write me up (I got a detention) for not turning upto lesson on time. He was too stupid to ask where I had gone. (He's messed up many times before) He is meant to help me in lessons and he sits right at the back of the classroom not helping me. I need to be told which room I am in at least a day or two in advance for exams and several times they have decided to change the room my exam is in the day of my exam so I've been moved and that has caused me to get overwhelmed which is not good because then I got perform upto my best in exams which messes up my future. At the start of this year they decided to advertise the college loads and caused double the amount of students to come to college than previous years, that caused teachers to have to work harder (There weren't enough staff in the first place) So now staff are leaving causeing the entire college to be understaffed. (The subject I'm learning (IT) has been hit the hardest) This has caused me to start debating weather to move to the Media courses as they seem a lot more interesting and they've actually got teachers. I'm behind on course work (because I had stupid teachers (The one good teacher has left) I've got 3 IT exams I've got 3 Maths exams So that is adding on the the massive amount of stress I've already got. I'm very sure that the staff IT has got are not autistic and have not had autism training because they don't understand at all. The two worse teachers in IT got fired) There are 2 teachers left and apparently I'm getting two more who I can't understand properly. I'm not happy about any of it but people don't really listen to me because I'm autistic.

52 and recent diagnosis. It’s been a long hard road. I live my favorite quote. (I forget the author): “If not for God, I be dead.”

Thank you, Orion (Brian). ha. every word you said was truth. people despise the truth, I like the truth. Im 68yoa, I will never be diagnosed. The system just basically gives me the paper chase story. im self diagnosed and you taught me what I know. My friend Autism, I try to look at it in that way. its quite simple for me to just be me, Thank God! Thanks again for 'feeding our heads', we need that in order to push thru this life.

That tshirt is awesome and it fits you very well . And you can tell people who haven't Autisme the truth 👏 Thank you for all the hard work that you do for you and your son but also all the people around the world who has Autisme to create more awareness and acceptence and break down myth about it and tell the hard true to those people who making ore lives redundant hard .

You always make good points and share them in an easily understood way.

I agree with you. Why not use the money on training for educators or law enforcement & hospital staff.

Your rant was thoroughly justified! 💚

You're so talented Orion.

huff & puff, its all true

Saturday night isn't the same without the a team

No obe seems to notice it

this is shattering ~ this herd of folks selling merch. with no benefit to the cause? makes me pissed. come to think of it, any type of 'Awareness Day' is bogus and somehow obtaining revenue from the population at large. think about that for a bit. its ALL rubbish. digging the vid thus far, now to continue watching...