Myasthenia Gravis and Exercise

LOL - I'm very happy to see my Snowflake Warrior art work in your presentation. MG has changed my life forever. I use to be an International Folk Dancer, dancing 40 hours a week. Now I'm fully disabled due to years of having MG without a diagnosis. What has helped me most to exercise is when I'm on a stationary bike, I peddle for two minutes, rest for 30 seconds, then peddle for 2 minutes, rest... and so on. It's frustrating to not be able to exercise in the ways that I use to, but I'm grateful for what I can do.

I was in bad condition, but first, I went to thymectomy surgery, and about 3 years after that, I started to exercise in gym.. oh, well, now I'm in better shape that most of my friends, who don't have this decease. I'm soooo happy! I've learned through the years that my muscles are in sleep when I don't use them. When you wake up your body, week by week, you're no longer weak!

This was good advice for loads of conditions, I wish more physios didn't push their patient too hard, I have had bad experiences.

Thank you!

Thank you for sharing this! - Michelle

Thank you. Very helpfull. 💐

Thanks for the vid, it helps me figuring out ways to exercise 😊

I kicked mg thru diet, exercise, yoga, meditation. cold showers, and working thru past trauma.

Is there any conversation concerning possible genetic therapy for a cure, i.e. CRISPR or some other genetic editing methods?

My wife is currently undiagnosed. She has been diagnosed with “undifferentiated connective tissue” but we think it is MG. She can’t hold a smile without one side drooping, has difficulty chewing, swallowing, talking, etc. She has muscle weakness all over, which seems to be exacerbated by heat. She just had two blood work tests for MG but they came back as negative, but we know that some people have MG without testing positive for the two tests. Where can we go from here? She has had to give up working, ballet, going back to college for a second bachelors.

I'm Myasthenia Gravis patient😔