Louise Thompson, living with Ulcerative Colitis

I was walking my dog a couple of months ago and suddenly had that feeling of dread lol, anyway about 20 seconds later totally had had an accident (shat my self). There was this guy behind me and he said 'are you ok' because he saw me curling over. I just said, yeah don't worry i just shit myself and started running home. Fortunately i was only a 100 yards away from home lol. But seriously itis life changing

Thank you, I just found this video. I was diagnosed with UC 35 years ago and at that time there was no social media and very little information in the public domain about the condition. I had a real struggle for the early years dealing with trying to manage the condition but also trying to inform employers about why I had times of being really ill or times with severe pain that affected my work. Its great to see that things have moved on from those days and we now live in a world of readily available information. Many thanks.

I just got diagnosed with proctocolitis in March of this year. I've lost around 10 lbs. and on a stupid amount of mesalamine for how many months, I don't know. Trying to stay positive but there's still fear of the unknown. Thanks for sharing your videos and reading the comments helps. My heart goes out to anyone who's dealing with UC.

I also have Ulcerative Colitis and I have been on different medications and IV infusions, It is very difficult and challenging to deal with. I’m glad to see other people who are speaking out about it because I personally don’t know anyone who has Ulcerative Colitis. I was diagnosed at 19 and am currently 26 and right now I am currently on prednisone because my current flare up was out of control. I have had to change my diet my lifestyle and besides prednisone I’m also currently on Entyvio and I take Lialda pills to control the swelling of the gut. I have a lot to say about my experience and years of dealing with Ulcerative Colitis, if anyone would like or need to speak to me about your Ulcerative Colitis diagnosis, I am here for you and I can answer any questions that anyone has. Also hearing your stories is truly inspiring. Just remember that I feel your pain and I am here for you.

Thank you for a great video. I am almost 64 and was diagnosed with UC ten years ago. I take two mezalazine tablets daily and have been in remission for seven years. My diet is basically whole food plant based so very high in fibre however I realise this would not be appropriate for everyone. Thanks again and wishing you well.

My ulcerative colitis has changed dramatically after I started smoking weed. I used to be so anti weed but it literally has saved me so much. I no longer suffer with inflammation.

Thanks for the video I have crohns colitis more people need to understand these diseases. So thank you x

Thanks for sharing your experience.

Well done Louise, by talking openly we can help people who are new to the disease as it’s a scary place to be at first! Great charity

You’re amazing, thank you for sharing your story 😊

Hey Louise, I loved you video. Thanks for sharing. I was diagnosed with UC 10 years ago. I have had a few bad flares up over the years but these past 2 years I have gained control over my UC. I'm glad you are doing well yourself. Glad to know we have a community to talk it over. I was lucky to have found my wife who is a medical assistant and understood my condition but has learned move over the years.

Thank you for sharing your story and I hope you are doing well now and God bless you.

Hi Louise, thanks so much for sharing your journey. I'm so sorry for what you've gone through! We were devastated when our daughter, Erin, was diagnosed with Crohn's back in 2001! She had to drop out of college, as she was too sick to continue. It wasn't long until someone told her about the Specific Carbohydrate Diet and she decided she had nothing to lose and wanted to go on it. Since she started it early in her Crohn's journey, she started to feel better quickly and had gained back 9 pounds by her 6 week check up! Her doctor wasn't really in favor of a nutrition approach, but said that she might as well keep doing whatever she was doing as it seemed to be helping. She's still on the diet and is off of all meds and feels great, as long as she stays on the diet 100%. But of course she's totally willing to do that since it's given her her life back. Just like you said, people seemed to come out the woodwork who have Crohn's or Colitis, asking her about her diet, and within a few years Erin and I started a website where we wrote down everything we knew about the diet with lots of recipes, helpful tips, stories, and information, so we could just refer people there! I would love to have you visit our site for yourself and see if it's something you might be interested in. Please feel free to visit us at NoMoreCrohns.com. Thanks, Louise, and blessings!

Great video, Louise! I was diagnosed with U.C. approximately a year ago. It’s been challenging, to put it as euphemistically as possible. I believe that it’s definitely helpful, psychologically, to hear stories like yours so that people with U.C. know what others are experiencing, and how they’re coping with this unfortunate disease. Thanks again for sharing!

Nice to hear someone in the public eye talking openly about UC. I was diagnosed with UC in May last year. It’s been a huge battle so far. YouTube has helped me connect with so many people and learn so much about my condition

hi Louise, So sorry to hear you have suffered so badly these past few years and hats off to you for getting yourself to such a good place. I have a different kind of colitis but it is every bit as life-limiting as yours. I was mis-diagnosed for the first 8 years as having IBS but was correctly diagnosed a few years ago and am now having a better time of things. A big thank-you to Crohns and Colitis UK for their help and support and for the cards to flash a shop/restaurant to ask to use their loo urgently. Also big applause for their Not Every Disability is Visible campaign. lots of love to all fellow sufferers and let'sdo what we can to make life easier for ourselves and those who come after us.

My husband has UC and it takes so much out of him. Thank you for sharing.

Thank you. I was just diagnosed 27/7/20....my diagnosis pending since 2012 due to failure in paper work not done from my hospital inpatient stay. I was told I would be referred to gastro team. But the paperwork was not done nor was a letter to my GP. My surgery was not aware n they would not chase or refer...the surgery was sold n the new doctors would not refer. I'm glad now I have the answer to my diarrhoea, fatigue, vomiting, unable to eat, bloating, farting, burping, etc. I am waiting for Crohns n colitis society to email me for support...due to covid...delay.

Thank you for sharing! I’ve been on mesalamine and mesalamine enemas for the last couple years but they’re no longer working for me (the enemas just haven’t really been helping me either!) so trying a biologic for the first time now. I’m hopeful but still scared of the unknown. It’s always so reaffirming and encouraging to hear others’ stories, especially the parts we’re all usually uncomfortable discussing! I feel less alone. Thank you!

Thanks for your help, I really appreciate it 🙏❤️